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Audrey33
#1 Posted : Thursday, June 24, 2010 12:07:12 PM Quote
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Joined: 12/16/2009
Posts: 156
Hi

I have just started enbrel as you all know but i am wondering what mobility did any of you get back when you had been on it awhile and what sort of pain relieve did you get and has it effected your diet in any way
sorry to keep asking questions but i am excited about the progress i have made now it is possibly very little really but is a great big step for me and as i was told yesterday by OH that came to work to see me and he said my glass was half full not the other way round. will read your reply soon

Kind regards Have a Nice day

Audrey.
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Lorna-A
#2 Posted : Saturday, June 26, 2010 5:53:13 PM Quote
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Joined: 3/8/2010
Posts: 914
Hi Audrey,

I am not on the same medication as you but if its working already thats brilliant and can only get even better. I'm on Mtx Hydrox and Folic Acid was on Sulph for about 2 years but stopped that last Aug as I no longer need it. I found with that I could not eat curries which I loved and it discolored my urine but other than that nothing else, now that it is stopped I can have curries again and urine is back to normal. It was funny I could not stomach the smell of curry even, and I ate it lots before. I was bedridden in the beginning almost all my joints were affected, now I keep really well so keep positive about the drugs your on. Good luck on your new medication hope its a great success. Lorna xx Smile
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lyn2
#3 Posted : Monday, June 28, 2010 2:44:50 PM Quote
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Joined: 12/10/2009
Posts: 653
Location: Notts
Hi Audrey

I'm pleased that you've started Enbrel, it can take a few weeks to work fully. I've been on it 4 years now, and I have improved greatly. I was virtually unable to do anything for myself, but now I can manage lots of things. I still can't walk very far, though, and I still get pain in various joints, but not as bad as before Enbrel.

It hasn't affected my diet in any way, apart from not drinking much alcohol.

I hope you carry on improving.

Lyn
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Rosemary-C
#4 Posted : Monday, June 28, 2010 9:29:40 PM Quote
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Posts: 11
Location: york
Hi Audrey,

I have just started Enbrel, I noticed right away that my fingers had improved also I feel as though I have some energy back but still need to rest in the middle of the day, early days for me too, but such high hopes for it.ThumpUp
Rosyx
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lisapamela
#5 Posted : Tuesday, June 29, 2010 10:20:34 AM Quote
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Joined: 12/5/2009
Posts: 51
Location: Blackburn, Lancashire
Hi Audrey

I have been on Enbrel for 7 years, I was part of the trials before it was licensed. Before I would get up in the morning and literally hurt everywhere, shoulders, hands, hips, knees and feet. I was on a high dosage of steroids and could not get the dosage down.

It has given me my life back. I gradually came off the steriods over 2 years. I am still on vaious other medication but steriods are a thing of the past. Of course I still get flare-ups now and again but on a daily basis I am pain free.

I sincerely hope that it works for you and makes a big improvement to your life.

Best wishes
Lisa
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